Showing posts with label aneurysmal subarachnoid haemorrhage aphasia arthritis. Show all posts
Showing posts with label aneurysmal subarachnoid haemorrhage aphasia arthritis. Show all posts

Wednesday 7 April 2021

 Traumatic Brain Injury. What? And yes - I am rather a bore about this. 😊




Anyone who would like to know what really happened to all those people you know [or don't know] that had a brain 'injury'.

Perhaps you noticed it on the news - in a film...at the bus stop...you look at people who look all weird. All broken. Friends tell you about 'people they know' that had such an 'awful' time. But they are ok now!

Of course they are. Most of the time the facts are 'invisible'. Sometimes the word 'invisible' changes into 'ignoring'.

A lot of these people struggle. Perhaps they can't speak. Or count. Or grasp a fast conversation mentally; or understand in a moment. Or read. Aphasia is very sutle really, unless you ask. A lot of us can't understand numbers. That really so sucks. Buying things is very chuckalicious. Not.

Or no-one bothers to see if they need a little help because asking for something - even a bus ticket - can be very very HARD!!

You who have never had a massive, traumatic brain injury - have a read sweetie pie. Because you CAN read. Try to get your head around the fact that it could actually happen to you...it's a little bit like having cancer. But harder.

And I can assure you - I speak with complete honesty about that. I have been through both.

I will always have the jolly aphasia.
That I can manage. Now.

I have actually stopped becoming horrendously violent. It has taken nearly 6 years for me to actually understand that shooting people is not allowed…heh heh

The interesting change of everything that happened while I was dying of a massive brain injury...it has been hard. But - onward and upward. Forever.

Saying to any of us who have this forever non stop #brain injury, ''but you look GREAT'' - it is not very useful. [note: polite remark by the Sarcastic Moi, right?]. Right.

We need people to understand that our lives have changed.

We are frightened. We are afraid. 😶
Useless.
We feed so awful. We need help - but it is hard to ask. Especially when people are too busy.

We want to find and see our old friends; our family; neighbours; people that we worked with - that they might suddenly come out with: ''hey - we read an article - now we have a small idea of what really happened! Just tell us what is really happening for you now. Can't we give you a hand?''

But that does not often happen - everyone thinks that either they can't cope with dealing with it, or they pretend that we really MUST seem fine…🤦‍♀️

If you would like to read and interesting article, please have a look here: 
Traumatic Brain Injury

Let me know what you think. Could be interesting for me that's for sure.

P.S.: The MRI scan was great this year, as all the aneurisms I have in my head have stopped moving / growing etc. Big yay!! Loving my surgeon

Friday 12 February 2021

MRI

Extreme #wind on our hill, scary trees at the end of our garden, ‑1 °c temperature [eee!! Ey?] and yet ANOTHER trip to the Royal Devon & Exeter NHS Foundation Trust this morning. Early. 

Brain scan [MRI]; every year. And no matter what anyone thinks, feels, says - this is the scariest for me all year until I’ve arrive on the other side this morning without having [perhaps literally] a small breakdown beside the horrible MRI creation. Thank god for the amazing people that look after me for this.

Today, speaking, common sense and bravery? Perhaps after the extreme noise in my head, the nervousness of using my same poor #head to make sure I don’t do anything the wrong way. I seem to do lots of things wrong, so my bravery is small today. Hey - onward and upward 

To be honest? That is where I say fuck. A lot - in and out of my head. Not just being jolly. It appears at it’s noisiest and most violent because your head does NOT want to go in there...

So. 9.30 this morning. 45 minutes of complete hideousness. The noise, for me, is possibly almost as incredible as being unable to “behave” as this is GREAT! See? For fucks sake...

I hope it’s still 45 minutes. They help me by telling me the minutes are passing - and how many I still have left. And DO NOT move. 

And those of you who have had this, keep your fingers crossed for me. #scary