Showing posts with label TBIwarrior. Show all posts
Showing posts with label TBIwarrior. Show all posts

Friday 9 June 2023

Memories - honest or not?

One of those astounding memories that reappear on Facebook every year - the beginning of a new life 9 years back. At the time, it was not for me really - but for the FH. For my family. For my friends. My backup. Then.

At the moment, during #AphasiaAwarenessMonth, people are beginning to comprehend that a #braininjury is not an ordinary #stroke πŸ§ πŸ—£️

At last πŸ˜€πŸ˜‚

I am getting better when I am not told that I am 'too slow' - 'two many curse words'...and definitely far too much honesty. Stand at the back #sandhy 😭😢

And no. The *after effects* of surviving a subarachnoid haemorrhage, which only INCLUDES #aphasia - does not go away. 

Onward and upward - we do try not to be a bore; we have to relearn our lives.

For me? Yet again. I always thought that getting better after ovarian was so hard. And it was - but I recovered with 2 years. I was on my feet by 5 years. Then? A new and interesting brain injury - and I am STILL trying to get back there. Hence rage. And having horrid speaking - and no, it's not who I was before.

So, working with the #tribe - and working together. Helping one another. And trying to stop talking bullshit - trying to be honest. #reading #writing #comprehension

Things we battle with every single day. Forever. 

It’s not #amazing πŸ™„ - BUT we are battlers; incredible Humans…🐱‍πŸ‘€πŸ§ 

Stand back and bow πŸ™πŸΌ✊🏻 - but only those who try to understand the after effects of a brain injury.
And hey!  I am no longer 'too slow' 





When the FH was alone... 😢🀐


aphasia








Saturday 31 December 2022

Titanium plates

A question for people who *wish to understand about titanium plates* that we people have it smashed into our skulls whilst not understanding anything about the after effectsπŸ€”

Is my titanium mesh:

A: Alpha alloys

B: Beta alloys

or

C: Alpha+beta alloys

Trying to understand [by trying to read ho ho] the information about a piece of metal in my skull πŸ’€ is extreme. Aphasia is still moving forward, but I still cannot understand well, as I cannot comprehend unless I have help. Help can be like sunshine in winter. Very little.

Having a chat with a doctor is not useful. Simply because I am unusual. 1 in 59 who survives with the effects of my brain bleed / subarachnoid haemorrhage / aneurism [and after 8 years, most people think I am now “fine” - I just love that 😳]. The type of stroke that I had after the craniotomy was minuscule compared to the bleed.

So. The pain in my head during extreme cold appears to be quite extreme. Therefore I am trying to work out the best thing to do. Wearing a woolly hat maybe the only answer but to recall putting that one my head each time? 🧠

Send me a postcard if you have any input about extremities after a Craniotomy in the titanium plate. When the weather is freezing πŸ₯Ά 

See info that I cannot understand 100%