Memories - honest or not?

One of those astounding memories that reappear on Facebook every year - the beginning of a new life 9 years back. At the time, it was not for me really - but for the FH. For my family. For my friends. My backup. Then.

At the moment, during #AphasiaAwarenessMonth, people are beginning to comprehend that a #braininjury is not an ordinary #stroke 🧠🗣️

At last 😤😂

I am getting better when I am not told that I am 'too slow' - 'two many curse words'...and definitely far too much honesty. Stand at the back #sandhy 😭😶

And no. The *after effects* of surviving a subarachnoid haemorrhage, which only INCLUDES #aphasia - does not go away. 

Onward and upward - we do try not to be a bore; we have to relearn our lives.

For me? Yet again. I always thought that getting better after ovarian was so hard. And it was - but I recovered with 2 years. I was on my feet by 5 years. Then? A new and interesting brain injury - and I am STILL trying to get back there. Hence rage. And having horrid speaking - and no, it's not who I was before.

So, working with the #tribe - and working together. Helping one another. And trying to stop talking bullshit - trying to be honest. #reading #writing #comprehension

Things we battle with every single day. Forever. 

It’s not #amazing 🙄 - BUT we are battlers; incredible Humans…🐱‍👤🧠

Stand back and bow 🙏🏼✊🏻 - but only those who try to understand the after effects of a brain injury.
And hey!  I am no longer 'too slow' 

When the FH was alone... 😶🤐

what you do defines you...

#blogpost01 #day 21

The word “week” is a very interesting word…

This #week - • drawing birthday cards

• creating ceramic style clay articles • chatting madly to a pc fellow called #dave to buy a new #pc #aphasiasucks #comprehension

• massive rage with the local doctors letter [ok if you can read comprehensively] telling me I will be checked for a #mini stroke? #fucksakes

• BUT a wonderful girl in the reception helped me feel a million times better. Booked an appointment with a #daktari that actually reads what actually happens to others. Hoorah

Love that receptionist at Claremont Medical Practice

• another brilliant chat - this time with first direct to be able to ACTUALLY use it again… amazing • thank the lord for the FH

• And: creating a 2nd head for my #smallhuman family - another art #prototype

• waiting for the snow, hail, hideous cold to bugger off in order to collect my first prototype + Tony’s #leopard clay animal

• waiting to see the surgeon to re-mend my broken face

So the word: “week”?

It feels like a word that said “weak” as I constantly struggle to remain focused before losing the plot with the anger of my brain. Not understanding whilst many find that I MUST be understanding.

And NO darlings, having had so many checks including the after effects of menopause, happily, it is actually created by my chuckalious broken brain…

“It is not who you are underneath, but what you do that defines you."

~ Batman

I will survive...

Running through my memories - I love that. Note. Sarcasm.  

Ovarian cancer
Bells palsy
Coccygectomy
Brain injury

Again, a particularly stressful few years before my brain injury [see Ovarian cancer?? pass the wine...now!] - thinking about not to take life for granted - so I am using the words of others - but getting the idea across...

Here is an excerpt from Steve Jobs’s 2005 commencement speech that mentions his philosophy of living each day as if it were his last.
A hard thing to get ones head around.

Try. I survived. 

Twice. 

Because every moment in life is valuable - so don't let it be taken away - hold on to life - with rage.
Cognitive reserve...

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"Life is full of surprises. You’ll never know for certain what your future will look like. You’ll never know where you end up or what you’ll accomplish in the next few years. You’ll never know who you will befriend, what you will experience, how you will feel…

If you only had 24 hours to live, you wouldn’t ever think about laying on your bed all day eating Doritos, watching mindless content on YouTube or scrolling through Instagram all day.

You’d realize how much time you’d spent on things you never cared about which made you feel good in the present, but would never amount to anything in the future.

We’d love a little more time to finally be able to say the honest truth; things you would never have thought of sharing about yourself without the thought of your impending death.

You won’t take your time for granted and would only pay attention to the things that are most important to you. You have no time to waste, because your life can end any minute."

~ Steve Jobs
1955 - 2011


Ovarian Cancer Action

Tenacity…

#blogpost01
#day04 

#blogger is in tired mode today 🤣

 😳

#keepingtrack